• Mashup Score: 1

    Boost global awareness at the IndoUS Bridging RARE Summit 2023!

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    • Join @indousrare at the Bridging RARE Summit 2023, connecting the Indian diaspora for a discussion of #RareDisease research and #ClinicalTrials globally on October 29-30. Learn more here: https://t.co/cAKn0G0gmp #bridge4rare #bridgingrare

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    Cheryl Petruk, co-founder of CACHEducation, talks about the need to properly educate patient advocates on advocacy fundamentals.

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    • Cheryl Petruk, co-founder of CACHEducation, talks about the need to properly educate patient advocates on the fundamentals of patient advocacy #checkrare #CACHEducation https://t.co/JeKKF9bdFD

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    Dr Ozlem Goker-Alpan and Dr John Jefferies discuss the role of the cardiologist and best practices for managing Lysosomal Disorders

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    • This CME/CE activity describes the pathophysiologies and management options for lysosomal disease patients with cardiomyopathies #checkrare #CME #cardiomyopathies https://t.co/oEdH8lGoT3 https://t.co/p1qkFNgve6

  • Mashup Score: 7

    NORD is dedicated to supporting education, elevating care, advancing research, and driving policy for rare diseases

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    • The 2023 #NORDSummit has officially concluded! Thank you to our moderators, panelists, attendees, and sponsors for another successful #RareDiseases & #OrphanProducts Breakthrough Summit. Check out https://t.co/RptPreG5v1 for more events and opportunities! https://t.co/HMOKesuPaX