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Mashup Score: 0Patient engagement difficult as long as ‘normal’ equals ‘healthy’ - 6 month(s) ago
Constant advocacy by patient groups at all levels is needed to help people with cancer navigate the healthcare system
Source: dailyreporter.esmo.orgCategories: Hem/Onc News and Journals, Latest HeadlinesTweet
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Mashup Score: 8Storming the Lab - NYU Journalism - 7 month(s) ago
A conversation for journalists, health care providers, and everyone else, featuring Amy Dockser Marcus, Pulitzer Prize-winning author of We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine, and Elaine Schattner, author of From Whispers to Shouts: The Ways We Talk About Cancer.
Source: journalism.nyu.eduCategories: Hem/Oncs, Latest HeadlinesTweet-
Next week! In-person and streaming @nyu_journalism: Join me and “We The Scientists” author @AmyDMarcus in discussion with journalist @RobinLloyd--on how patient advocacy and activism is changing medical research. https://t.co/VvGJc72bFB #NYC #science #patientadvocacy
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Mashup Score: 1Creating the Field of GI Nutrition with Kate Scarlata, RDN - 7 month(s) ago
Source/Disclosures Published by: Disclosures: Berry and Chey report no relevant financial disclosures. Scarlata reports stock options with Epicured LLC and FODY Food Company, financial support from Dr. Schar, Mahana Therapeutics, Nestle Health Science,…
Source: www.healio.comCategories: Gastroenterology, Latest HeadlinesTweet-
How can dieticians avoid over-pathologizing GI patients? @sameerkberry and @umfoodoc speak with @KateScarlata_RD about how understanding patients’ relationships with food can aid a more accurate diagnosis. #GITwitter #patientadvocacy Listen now: https://t.co/YXISkiRcPz https://t.co/R6Jhns2Xs9
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Mashup Score: 0Patient Advocacy Tools with Tracy Rode - 9 month(s) ago
Source/Disclosures Published by: Disclosures: Jain and Rode report no relevant financial disclosures. July 06, 2023 36 min listen …
Source: www.healio.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
In the latest episode of Oncology Overdrive: @power4patients’ Tracy Rode talks with host @ShikhaJainMD about how her journey as a cancer patient was a catalyst for working in advocacy. #patientadvocacy #patientempowerment #canceradvocacy Listen now: https://t.co/1AXULkFsoq https://t.co/jMUFog7QOH
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Mashup Score: 0Patient Advocacy Tools with Tracy Rode - 10 month(s) ago
Source/Disclosures Published by: Disclosures: Jain and Rode report no relevant financial disclosures. July 06, 2023 36 min listen Source/Disclosures Published by: Disclosures: Jain and Rode report no relevant financial disclosures. ADD TOPIC TO EMAIL ALERTS Receive an email when new articles are posted on Please provide your email…
Source: www.healio.comCategories: Hem/Onc News and Journals, Latest HeadlinesTweet-
In the latest episode of Oncology Overdrive: @power4patients’ Tracy Rode talks with host @ShikhaJainMD about how her journey as a cancer patient was a catalyst for working in advocacy. #patientadvocacy #patientempowerment #canceradvocacy Listen now: https://t.co/1AXULkFsoq https://t.co/lI9ZZSXzLs
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Mashup Score: 1
After Brian Wallach was diagnosed with ALS, he and his wife Sandra Abrevaya threw themselves into advocating for patients. Everyone up to President Biden took notice.
Source: NPRCategories: Hem/Oncs, Latest HeadlinesTweet-
"I wake up every day, and I realize that I want to live and see many more days," said Brian Wallach, @bsw5020 who has #ALS. "And I want that for every family fighting this disease." @NPR https://t.co/Mp9dGq4tMm #PatientAdvocacy @iamalsorg
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Mashup Score: 4When Dying Patients Want Unproven Drugs - 10 month(s) ago
Patient-advocacy groups mobilized to demand access to a controversial new drug called Relyvrio. But hasty approval comes at a cost.
Source: The New YorkerCategories: Hem/Oncs, Latest HeadlinesTweet-
This part resonates. “Please do not let another generation of A.L.S. patients die in pursuit of the perfect,” said Brian Wallach. "Scientific certainty was a luxury that only the healthy could afford." https://t.co/ES8K0cyyjG #patientadvocacy #drugaccess #FDA @iamalsorg
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I don't agree with the spin of this @NewYorker piece on the FDA and investigational drug access. Among a host of issues, the repeated citation of @akesselheim, who figures "only about a fifth of approved drugs ever showed a meaningful impact on survival." https://t.co/ES8K0cyyjG
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Mashup Score: 0Book Group Discussion Questions - 11 month(s) ago
What is cancer awareness? What is meant by fatalism concerning cancer? Battle language has been applied to cancer in many contexts. Discuss why some patients chose to say they were battling …
Source: Elaine SchattnerCategories: Hem/Oncs, Latest HeadlinesTweet-
Wondering what my book is about? Belong to a book group? Here's a list of suggested discussion questions for "From Whispers to Shouts: The Ways We Talk About Cancer," https://t.co/LCtK6KvvDu #cancer #patientadvocacy #history https://t.co/LCtK6KvvDu #BookTwitter @ColumbiaUP https://t.co/Ab0RtDd4Xs
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Mashup Score: 1CTBIDS - 12 month(s) ago
CT Bids buyers web app
Source: ctbids.comCategories: Healthcare Professionals, Latest HeadlinesTweet-
RT @Diptirbhatt: https://t.co/S8qrBApFol The right link!!! #rva #MightyCasey #PatientAdvocacy @janoldenburg
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Mashup Score: 0From Whispers to Shouts: The Ways We Talk About Cancer - 12 month(s) ago
available in libraries, online, and in stores: Columbia University Press (use “CUP20” for 20% discount) Amazon Barnes & Noble Bookshop.org Booksmith (San Francisco) Blackwell’…
Source: Elaine SchattnerCategories: Hem/Oncs, Latest HeadlinesTweet-
What is the impact of openness about cancer? Chapter 14 of my book considers the perks and possible downside of cancer #awareness. #PatientAdvocacy #PatientVoices #cancerstigma #cancer #history #FromWhispersToShouts https://t.co/fsEx2wz9fo https://t.co/gV2dZZh5oE
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#ESMO23: Poor access to novel medicines is an issue for many people with #cancer. Jana Peluchova, #ESMODailyReporter: #PatientAdvocacy is needed to help navigate the #HealthcareSystem and improve #PatientEngagement 👉https://t.co/LUjmx4DsrS https://t.co/d9M67hb8xv