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Mashup Score: 1The Challenges of Being an LGBT+ Spoonie - 11 month(s) ago
“Many queer spoonie folks may even face discrimination from within the LGBT+ community.”
Source: The MightyCategories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 1
Increase public awareness, improve access to health care, increase federal research funding , and influence public policies that impact the spondylitis community.
Categories: Latest Headlines, RheumatologyTweet-
Petition – Fund Spondyloarthritis (SpA) Research! Increased federal & state funding is the key to unlocking medical breakthroughs. Your voice is the most powerful tool and your future is worth it! Sign here: https://t.co/QGYzgfoHWy #chronicpain #spondylitis #axspa #spoonie https://t.co/jgqnX0ZDvM
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Mashup Score: 0Patient Access Advocacy Day at the Texas Capitol - 1 year(s) ago
Join us in Austin and make your voice heard re: insurance barriers that challenge patients’ access to medically-necessary care and treatments. Hosted by the Texas All Copays Count Coalition + the Texas Coalition for Stable Patients, whose 60+ coalition partners are advocating for legislation to improve patient-centered care.
Source: Constant ContactCategories: Latest Headlines, RheumatologyTweet-
Your voice matters! Join fellow patients, providers & caregivers in Austin 2/28 for Patient Access Advocacy Day. #Txlege needs to protect patient assistance and treatment access. Lawmakers must hear from real Texans! https://t.co/s2NszInujt #AllCopaysCount #spondylitis #spoonie https://t.co/Kfuo3ESSQ8
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Mashup Score: 1Connect with others living with spondylitis! | SPONDYLITIS.ORG - 1 year(s) ago
Support groups provide a safe environment for confidential, non-judgmental interactions with peers who know live with spondylitis.
Categories: Latest Headlines, RheumatologyTweet-
SAA Support Groups offer education and emotional support from others living with spondyloarthritis. You are not alone. Reach out and connect with SAA Support Groups today: https://t.co/EOiw9Qte0p #spondylitis #axspa #chronicpain #spoonie #ankylosingspondylitis https://t.co/CZUjVqolcV
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Mashup Score: 0
Increase public awareness, improve access to health care, increase federal research funding , and influence public policies that impact the spondylitis community.
Categories: Latest Headlines, RheumatologyTweet-
POLL: Having Trouble Getting a Rheumatologist Appt.? Help us better understand the importance of this issue to the SpA community: https://t.co/o0PQp6B3OT #spondylitis #spoonie #chronicpain https://t.co/a8Mpy2IM4T
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Mashup Score: 1Connect with others living with spondylitis! | SPONDYLITIS.ORG - 1 year(s) ago
Support groups provide a safe environment for confidential, non-judgmental interactions with peers who know live with spondylitis.
Categories: Latest Headlines, RheumatologyTweet-
SAA Support Groups offer education and emotional support from others living with spondyloarthritis. You are not alone. Reach out and connect with SAA Support Groups today: https://t.co/EOiw9Qte0p #spondylitis #axspa #chronicpain #spoonie #ankylosingspondylitis https://t.co/b5X8uQ1DtY
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Mashup Score: 2Instagram - 1 year(s) ago
creaky_joints 1,707 posts · 15.9K followers
Source: www.instagram.comCategories: Latest Headlines, RheumatologyTweet-
RT @SethSaidSo: This @CreakyJoints presentation at #acr22 is SPOT ON! #patients #rheumtwitter #spoonie https://t.co/mIqN3hwRwE
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Mashup Score: 6
Patient advocate explores how calculating an event’s value could help people with chronic illness prioritize how to expend energy.
Source: CreakyJointsCategories: Latest Headlines, RheumatologyTweet-
Attention all #Spoonie friends: Tomorrow at #ACR22 @theYoungFace_RA will present "Engaging with the Spoon Theory: How I Make Decisions Using a Cost-Benefit Analysis that Works to Improve My Mental Health While Living with RA”. https://t.co/ivW1bsatvT
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Mashup Score: 0
Increase public awareness, improve access to health care, increase federal research funding , and influence public policies that impact the spondylitis community.
Categories: Latest Headlines, RheumatologyTweet-
Halloween Day of Action: Because Step Therapy is Scary! Being sick is scary enough, #spondylitis patients shouldn't have to fight to get the meds they've been prescribed. Please join us and ask Congress to support the #SafeStepAct: https://t.co/Y494bheXmb #axSpA #spoonie https://t.co/G7hjZ1ZYIu
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Mashup Score: 0Connect with others living with spondylitis! | SPONDYLITIS.ORG - 2 year(s) ago
Support groups provide a safe environment for confidential, non-judgmental interactions with peers who know live with spondylitis.
Categories: Latest Headlines, RheumatologyTweet-
Did you know you're not alone? If you need to talk SAA is here for you. Reach out & connect with SAA Support Groups today: https://t.co/EOiw9Qte0p #spondylitis #axspa #chronicpain #spoonie #ankylosingspondylitis https://t.co/fMJzR5Xss7
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"Not a single one of us is 'just' a #spoonie. We are mothers, fathers, husbands, wives, sisters and brothers... We are also queer." In honor of #PrideMonth, check out this piece on @TheMightySite on difficulties faced by #LGBTQ spoonies: https://t.co/GhOCl0fO8U