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Mashup Score: 2Thank you, Susannah Fox (the other one, that is) - 3 day(s) ago
One year ago this week I ported over five years’ worth of posts from e-patients.net and launched this blog. But I have never shared the story behind the susannahfox.com domain name (and there is a story). Here it is: In 2006 I was a bridesmaid for my friend Steph up in Maine. It poured rain to the point that the bridesmaids wore garden clogs and the groomsmen wore waders, but we didn’ t care. It was a beautiful wedding. During the party, a woman asked to be introduced to me. She was a friend of Steph’s
Source: susannahfox.comCategories: General Medicine News, General HCPsTweet
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Mashup Score: 3
CreakyJoints is a leading support, education, advocacy, and research organization for people living with arthritis and rheumatic disease.
Source: creakyjoints.orgCategories: General Medicine News, General HCPsTweet-
Arthritis Power (@CreakyJoints) is a patient-inspired and patient-managed research partnership between https://t.co/JulTDBv0GF and the University of Alabama at Birmingham: https://t.co/GWkGE30z01
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Mashup Score: 3ICHOM Conference 2024 - 2 month(s) ago
Discover the world’s largest value-based healthcare conference, uniting leaders from public, private, and industry sectors, along with patient advocates, payers, and regulators.
Source: conference.ichom.orgCategories: General Medicine News, General HCPsTweet-
Join me at #ICHOM2024 in Amsterdam! Looking forward to sharing the stage with Sneha Dave of @genpatient and @JamieHeywood https://t.co/l4Vt39pTvw https://t.co/sYCFwklfox
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Mashup Score: 2Agenda - 2 month(s) ago
AHIP is the national association whose members provide health care coverage, services, and solutions to hundreds of millions of Americans every day. We…
Source: www.ahip.orgCategories: General Medicine News, General HCPsTweet-
Will I see you next week at #AHIPDigital in Nashville? Come to the @AHIPCoverage Meet Up Lounge (Room 104 , Level 1) at 6:30pm on Tues. 9/24 - first 100 people get a free copy of my book, #RebelHealth! https://t.co/e6d1hwTe5t
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Mashup Score: 2Case study: Recurrent fever - 3 month(s) ago
Anyone who has endured a multiple-day fever — or cared for someone with one — knows how exhausting it can be. Imagine experiencing nine weeks of a mysterious elevated temperature. Then nine MONTHS of what feels like a personal broken thermostat. And clinicians have little to no explanation besides plans for future tests. That’s the situation that a friend of mine is in and he turned to me for help in crowdsourcing some answers — or at least some new questions to ask. At age 65 I have so much to be
Source: susannahfox.comCategories: General Medicine News, General HCPsTweet-
Thanks to @ePatientDave for answering the call for #PeerHealthAdvice by not only creating a useful query, but sharing guidance about using LLMs as a patient: https://t.co/VWFdn9BqiX
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Mashup Score: 0Case study: Recurrent fever - 3 month(s) ago
Anyone who has endured a multiple-day fever — or cared for someone with one — knows how exhausting it can be. Imagine experiencing nine weeks of a mysterious elevated temperature. Then nine MONTHS of what feels like a personal broken thermostat. And clinicians have little to no explanation besides plans for future tests. That’s the situation that a friend of mine is in and he turned to me for help in crowdsourcing some answers — or at least some new questions to ask. At age 65 I have so much to be
Source: susannahfox.comCategories: General Medicine News, General HCPsTweet-
Second question: Has anyone experienced recurrent fever and also discovered through imaging multiple “nodules” (could also be called lesions, bodies, tumors) on the spine? Details: https://t.co/1j9QRnjPXE
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Mashup Score: 2Get In the Game: Tapping into Patient Expertise for Healthcare Innovation with Susannah Fox - 3 month(s) ago
Susannah Fox, author of Rebel Health, delves into the empowering world of peer-to-peer healthcare.
Source: healthpodcastnetwork.comCategories: General Medicine News, General HCPsTweet-
Thanks, @andreaaustinmd, for asking such great questions about the patient-led revolution and #RebelHealth https://t.co/25ezYHumHF
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Mashup Score: 20Patient-led Innovation - 5 month(s) ago
Over the last 20 years, I have spent time in patient-, survivor-, and caregiver-led health communities, learning from rebels and pioneers about the possible future of medical and assistive devices, treatment discovery, public health surveillance, and more. Radical patients don’ t wait to be invited, they break in and take what they need from health care, inventing as they go. They often band together because mainstream institutions ignore or do not prioritize their problems. It is our opportunity to join
Source: susannahfox.comCategories: General Medicine News, General HCPsTweet-
I'm collecting examples of patient-, survivor-, and caregiver-led companies and organizations as a tip list for investors, leaders, and policymakers who want to level up their health care game: https://t.co/JN9kzfw0xJ
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Mashup Score: 0AskEllyn.ai - A breast cancer journey is bewildering, lonely and terrifying. You and your family don't have to do it alone. Let me hold your hand. - 5 month(s) ago
A breast cancer journey is bewildering, lonely and terrifying. You and your family don’t have to do it alone. Let me hold your hand.
Source: askellyn.aiCategories: General Medicine News, General HCPsTweet-
I'm continually finding new patient-led innovations. If you've got one to share, please let me know. Today's addition: AskEllyn, a conversational AI for breast cancer information and support https://t.co/naTj7IyqXR
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Mashup Score: 3CreakyJoints - Arthritis Support, Education, Advocacy and Research - 5 month(s) ago
CreakyJoints is a leading support, education, advocacy, and research organization for people living with arthritis and rheumatic disease.
Source: creakyjoints.orgCategories: General Medicine News, General HCPsTweet-
Arthritis Power (@CreakyJoints) is a patient-inspired and patient-managed research partnership between https://t.co/JulTDBv0GF and the University of Alabama at Birmingham: https://t.co/GWkGE30z01
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A consequence of being late to a platform is that my friend Susannah Fox Jr. nabbed our name for her handle, so I have to use my middle initial. I will be forever indebted to her for giving me our domain name https://t.co/aV5eU4vKPd