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Mashup Score: 4FSR Global Sarcoidosis Clinic Alliance Volunteer Program — Foundation for Sarcoidosis Research - 2 year(s) ago
FSR is looking for Global Sarcoidosis Clinic Alliance Volunteers! The FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) is a member program consisting of
Categories: Latest Headlines, Rare DiseaseTweet
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Mashup Score: 0
Foundation for Sarcoidosis Research (FSR), the leading international organization dedicated to elevating research, raising awareness and providing support
Categories: Latest Headlines, Rare DiseaseTweet-
.@StopSarcoidosis is proud to announce the release of the "Ignore No More Campaign on Clinical Trials Diversity: Advancing Clinical Trial Equity for Black Patients with #Sarcoidosis." Read the white paper: https://t.co/1MrXervHrZ #healthequity #stopsarcoidosis #clinicaltrials
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Mashup Score: 10
During these live, interactive, educational forums, you can engage with world-renowned medical experts and other clinicians as they present research and
Categories: Cardiologists, Latest HeadlinesTweet-
Which imaging test should we use to diagnose cardiac sarcoidosis? Watch me argue for CMR and Sanjay @sanjaydivakaran argue for PET in this FSR @stopsarcoidosis virtual forum today at 4 pm Central Time. Register for free - https://t.co/QRG7k3UcVW #WhyCMR #ThinkPET https://t.co/NQLvcivaaE
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Mashup Score: 3FSR Global Sarcoidosis Clinic Alliance Volunteers — Foundation for Sarcoidosis Research - 2 year(s) ago
FSR is looking for Global Sarcoidosis Clinic Alliance Volunteers! The FSR Global Sarcoidosis Clinic Alliance (FSR-GSCA) is a member program consisting of
Categories: Latest Headlines, Rare DiseaseTweet-
If you are impacted by #sarcoidosis, you can make a difference for the #sarcoidosis community by volunteering at a local @Stopsarcoidosis Global #Sarcoidosis Clinic near you! Apply to become a Community Outreach Leader or Support Group Leader here: https://t.co/Y7S5OUUQyE
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Mashup Score: 2Education Webinar: Managing Sarcoidosis and Treatment Related Side Effects — Foundation for Sarcoidosis Research - 3 year(s) ago
12/14/2022 @ 4:00 pm – 5:10 pm – Join us Wed, December 14, 2022, 4:00 PM – 5:10 PM CST. The complexities of sarcoidosis mean patients are often left with many questions about their diagnosis. These questions are often compounded by the many side effects often associated with treatment for sarcoidosis. Such as the side effects from corticosteroids. This webinar will explore: Common treatments […]
Categories: Latest Headlines, Rare DiseaseTweet-
Medications to treat #sarcoidosis can often have negative side effects. Join @StopSarcoidosis on 12/14 for the educational webinar: Managing #Sarcoidosis and Treatment Related Side Effects. Three experts will discuss their current treatments! Learn more: https://t.co/YOASxU1ib4
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Mashup Score: 2Wellness Webinar: Navigating the Holidays with Sarcoidosis — Foundation for Sarcoidosis Research - 3 year(s) ago
11/19/2022 @ 2:00 pm – 3:00 pm – Join us Sat, November 19, 2022, 2:00 PM – 3:00 PM CST. Managing a chronic disease can be overwhelming. Patients often miss out on holiday and family events or opportunities due to fatigue or other symptoms related to their sarcoidosis. Some patients may feel increased pressure to do more during the holidays, or the stress […]
Categories: Latest Headlines, Rare DiseaseTweet-
Join @StopSarcoidosis's Wellness Webinar: Navigating the Holidays with #Sarcoidosis on 11/12! Sandra Manley-Eichler, a behavioral health integration clinician, will share tips to help patients manage #sarcoidosis during the holidays. Learn more: https://t.co/H8E2ctllQl
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Mashup Score: 5Education Webinar: Musculoskeletal Sarcoidosis — Foundation for Sarcoidosis Research - 3 year(s) ago
10/20/2022 @ 12:00 pm – 1:00 pm – Join us Thu, October 20, 2022, 12:00 PM – 1:00 PM CDT. Sarcoidosis can affect any organ, including bones and joints. These manifestations are often poorly understood, and patients are left with many questions. This webinar will cover: Common symptoms of musculoskeletal sarcoidosis Getting a diagnosis of musculoskeletal sarcoidosis Common treatments Strategies for…
Categories: Latest Headlines, Rare DiseaseTweet-
Did you know? Any organ, including bones and joints, can be impacted by #sarcoidosis. Specialty care physician, Dr. Pragya Singh, will join @Stopsarcoidosis for an upcoming educational webinar on #musculoskeletal #sarcoidosis on 10/20! Learn more: https://t.co/EnLIaSeK1s
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Mashup Score: 4FSR Global Virtual Patient Summit: Unveiling Possibilities — Foundation for Sarcoidosis Research - 3 year(s) ago
FSR Global Virtual Patient Summit: Unveiling Possibilities Saturday, July 30 – Sunday, July 31 2022 8:00 am – 5:00 pm CT (9:00 am – 6:00 pm ET) Early Bird
Categories: Latest Headlines, Rare DiseaseTweet-
Newly diagnosed and long-term #Sarcoidosis patients and caregivers are invited to learn and connect at @StopSarcoidosis's Global Virtual Patient Summit: Unveiling Possibilities from 7/30-7/31. Early Bird Reg is $60 until 6/30. Learn more: https://t.co/aVnSZYwCkC #StopSarcoidosis
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Mashup Score: 2
04/13/2022 @ 7:00 pm – 8:00 pm – Join us on World Sarc Day on Wednesday, April 13th, from 7:00PM – 8:00PM CDT. To help celebrate World Sarcoidosis Day, FSR is hosting a Trivia Night for our community! Join us for this virtual social event as our host, FSR Patient Advocate Erica Courtenay-Mann, tests our knowledge against trivia questions that will make you […]
Categories: Latest Headlines, Rare DiseaseTweet-
Join @StopSarcoidosis on #WorldSarcDay, April 13 @7PM CDT for a free, virtual Trivia Night event! Test your knowledge against both #sarcoidosis and general knowledge questions during this social event. Register here: https://t.co/onchsXGSuu #MakeItVisible
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Mashup Score: 3Ignore No More: Sarcoidosis, The Rare Disease African American Women Need to Know — Foundation for Sarcoidosis Research - 3 year(s) ago
02/16/2022 @ 1:00 pm – 2:30 pm – Join us Wednesday, February 16, 2022, from 1:00 – 2:30 pm CT/ 2:00 ET – 3:30 pm ET Research shows sarcoidosis impacts African American women at a higher rate than other patients with sarcoidosis. They have more severe and chronic forms of sarcoidosis, higher rates of hospitalization, are more likely to experience depression and have […]
Categories: Latest Headlines, Rare DiseaseTweet-
Join @StopSarcoidosis and members of FSR’s Women of Color Advisory Committees on 2/16 for an engaging discussion on #sarcoidosis, how it impacts #BlackWomensHealth, and what can be done to improve health outcomes. Register here: https://t.co/fPtBvkIDC3 #IgnoreNoMore
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.@StopSarcoidosis is looking for dynamic, motivated individuals impacted by #sarcoidosis to apply to become Global Sarcoidosis Clinic Alliance Community Outreach Leaders and Support Group Leaders. Applications close June 26! Learn more and sign up here: https://t.co/EiVHkaAA8a