-
Mashup Score: 3On the Horizon: A Robot to Assist ALS Patients - SBU News - 23 hour(s) ago
Interdisciplinary research team using AI, engineering, and knowledge of disease complications to create “CART” STONY BROOK, NY, April 25, 2024 – The debilitating disease of amyotrophic lateral sclerosis (ALS) leads to loss of mobility and an inability for patients to complete even basic tasks like lifting their arms, eating, or moving their hands. This brings great stress
Source: news.stonybrook.eduCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 3
The former N.F.L. player has been living with A.L.S. for more than a decade. Sharing “the most lacerating and vulnerable times” in “A Life Impossible” was worth the physical and emotional toll, he says.
Source: www.nytimes.comCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 2
The FDA’s Center for Biologics Evaluation and Research is planning to release some crucial guidance soon for CRISPR and gene therapy developers on platform technologies, accelerated approvals for rare diseases, and potentially in the
Source: endpts.comCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 5ALS Therapy Development Institute - 3 day(s) ago
We are the world’s foremost drug discovery lab focused solely on ALS -ALS TDI
Source: www.als.netCategories: General Medicine News, Rare DiseaseTweet-
We know there are pay-to-play offers at clinicaltrials dot gov that are not real trials. They essentially use ct dot gov to advertise. Do the many sites that repackage ct dot gov data for PLWALS filter those out? I only know of one that does (https://t.co/MrbCQWWxoQ) Any others? https://t.co/AYE3esgXpd
-
-
Mashup Score: 0Target ALS launches new data portal for research - 3 day(s) ago
A nonprofit medical research foundation has launched a data portal designed to help spur scientific breakthroughs for the disease amyotrophic lateral sclerosis (ALS).
Source: www.labpulse.comCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 2
Researchers say it’s possible for nanoparticles to go through the digestive system and deliver medicine directly to the brain tissue.
Source: www.futurity.orgCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 1Pope Francis Receives in Audience Woman with Lateral Amyotrophic Sclerosis - ZENIT - English - 3 day(s) ago
“Mrs Zeza” expressed her firm conviction that her faith is stronger than any illness. Her testimony spread widely on the Vatican’s social networks, where her words resounded profoundly in the Pope’s heart.
Source: zenit.orgCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 2
Affinia Therapeutics announced that new preclinical data on its novel AAV capsids for genetic cardiomyopathies and diseases of the central nervous system such as amyotrophic lateral sclerosis, as well as the Company’s high-yield manufacturing process, will be presented in several oral and poster sessions at the American Society of Gene and Cell Therapy 2024 Annual Meeting, being held May 7-11, 2024 in Baltimore, MD and virtually.
Source: www.biospace.comCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 1Rare diseases, ALS: approval from the Ministry of Justice to the right to non-verbal communication - 3 day(s) ago
The Ministry of Justice officially confirmed the conclusions of the National Council of Notaries on full support for the evolutionary interpretation of the notarial law for non-verbal communication. The announcement was welcomed with enthusiasm by the national president of the Italian Amyotrophic Lateral Sclerosis Association (Aisla), Fulvia Massimelli: “Communication is undoubtedly an essential challenge for […]
Source: www.ruetir.comCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 3
Small study suggested benefits for MS patients with chronic optic neuropathy
Source: www.medpagetoday.comCategories: General Medicine News, Rare DiseaseTweet
On the Horizon: A Robot to Assist ALS Patients https://t.co/WRHw744FPi