-
Mashup Score: 1
Neuralink rival Synchron is connecting its brain–computer interface with consumer technologies to allow people with paralysis more functionality.
Source: www.wired.comCategories: General Medicine News, Rare DiseaseTweet
-
Mashup Score: 1National Sickle Cell Awareness Month - Sickle Cell Disease Association of America Inc. - 4 hour(s) ago
September is National Sickle Cell Awareness Month, designated by Congress to help focus attention on the need for research and treatment of sickle cell disease. Read the President’s Proclamation here. SCDAA’s 2023 theme is Sickle Cell Matters 2023. View our Awareness Month Flyer & Facts Sheet. Download our Social Media Toolkit We encourage everyone to […]
Source: www.sicklecelldisease.orgCategories: General Medicine News, Rare DiseaseTweet-
September is #SickleCellAwarenessMonth – a pivotal time to shine a spotlight this chronic inherited blood disorder that affects approximately 100,000 Americans. Learn more here: https://t.co/sX2cmHMcvp @SCDAAorg #SickleCellMatters2023 #SCDAA2023AwarenessMonth, #SCDSCTmatters
-
-
Mashup Score: 0
The National Organization for Rare Disorders (NORD) has important information to share with you ahead of Medicare Open Enrollment as two new benefits of the
Source: rarediseases.orgCategories: General Medicine News, Rare DiseaseTweet-
If you are on #Medicare or plan to enroll for 2025, NORD has important information about two new changes that affect the cost of your medications. Learn more ahead of Open Enrollment on October 15: https://t.co/5tVKfJqKnI #InflationReductionAct #OpenEnrollment
-
-
Mashup Score: 0RDLA Advisory Committee Membership Application 2024-2025 - 9 hour(s) ago
Take this survey powered by surveymonkey.com. Create your own surveys for free.
Source: www.surveymonkey.comCategories: General Medicine News, Rare DiseaseTweet-
Advisors needed. https://t.co/yrOPbG1BWH
-
-
Mashup Score: 4Learn About WHIM Syndrome - 14 hour(s) ago
WHIM syndrome is a rare, congenital primary immunodeficiency disorder associated with severe neutropenia that affects all ages.
Source: CheckRare.comCategories: General Medicine News, Rare DiseaseTweet-
WHIM syndrome is a rare, congenital primary immunodeficiency disorder associated with neutropenia that typically presents in childhood or adolescence Check out our learning page for more information #checkrare #WHIMSyndrome https://t.co/XDxcWgSIEm
-
-
Mashup Score: 1This Brain Implant Lets People Control Amazon Alexa With Their Minds - 15 hour(s) ago
Neuralink rival Synchron is connecting its brain–computer interface with consumer technologies to allow people with paralysis more functionality.
Source: www.wired.comCategories: General Medicine News, Rare DiseaseTweet-
RT @BrielmaierL: This Brain Implant Lets People Control Amazon Alexa with Their Minds | WIRED https://t.co/uscMr8vdr5
-
-
Mashup Score: 3
The Global Paroxysmal Nocturnal Hemoglobinuria (PNH) Patient Registry registry powered by NORD platform.
Source: pnh.iamrare.orgCategories: General Medicine News, Rare DiseaseTweet-
Hear what other participants are saying about the Global #PNH Patient Registry! Do you want to be a part of this important research too? Learn more at https://t.co/EgBjcFvgTA https://t.co/yjHwX6O4un
-
-
Mashup Score: 0Rare Action Network (RAN) on the Road - Oklahoma City - 1 day(s) ago
Take this survey powered by surveymonkey.com. Create your own surveys for free.
Source: www.surveymonkey.comCategories: General Medicine News, Rare DiseaseTweet-
#Oklahoma Rare Action Network members and interested volunteers are invited to join NORD in-person at United Way of Central Oklahoma on Friday, September 27 from 9am-1pm for a #RareDisease advocacy workshop! Register here: https://t.co/3tMEdev3xj #OklahomaCity #OKC #OKleg https://t.co/06QGtlt2E6
-
-
Mashup Score: 3An important step in the BIRC4 forest - 1 day(s) ago
In this issue of Blood, Dissanayake and colleagues present their discovery of a novel mutation in the X-linked inhibitor of apoptosis protein (XIAP) gene,
Source: ashpublications.orgCategories: General Medicine News, Rare DiseaseTweet-
An important step in the BIRC4 forest https://t.co/6cRpPa16lJ #immunobiologyandimmunotherapy
-
-
Mashup Score: 5
Watch David Begnaud’s full interview with former New Orleans Saints safety Steve Gleason, who was diagnosed with ALS in 2011 and started a foundation to help…
Source: www.youtube.comCategories: General Medicine News, Rare DiseaseTweet-
Full interview: Former NFL player Steve Gleason on living with ALS https://t.co/wtnQ0FOp1J via @YouTube
-
RT @BrielmaierL: This Brain Implant Lets People Control Amazon Alexa with Their Minds | WIRED https://t.co/uscMr8vdr5