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Mashup Score: 1Guidance for Industry - 3 hour(s) ago
Key Information and Facilitating Understanding in Informed Consent Guidance for Sponsors, Investigators, and Institutional Review Boards
Source: www.fda.govCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 5Cycle 2 2024 -- Addressing Rare Diseases Topical PCORI Funding Announcement Applicant Town Hall - 6 hour(s) ago
Tuesday, May 14, 2024; 12:00 – 1:00 pm ET PFA Opens May 7, 2024 Letter of Intent (LOI) Deadline June 4, 2024; 5 pm (ET) LOI Status Notification July 2, 2024 Application Deadline Sept. 4, 2024; 5 pm (ET) During this 60-minute webinar, PCORI will walk you through: PCORI overview, including what CER and CER-related projects we fund Details of this funding announcement, including both programmatic and administrative requirements Unique requirements for patient and stakeholder engagement PCORI’s Merit Review
Source: www.pcori.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 3Optimizing FDA’s Use of and Processes for Advisory Committees - 8 hour(s) ago
Listening Session
Source: www.fda.govCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 4
Patients with amyotrophic lateral sclerosis (ALS) residing in Reggio Calabria above all lack territorial support, especially with regards to pneumological and palliative management. To address this problem, the Italian Amyotrophic Lateral Sclerosis Association (AISLA) and the Provincial Health Authority (ASP) of Reggio Calabria have started today an innovative training course that focuses precisely on the […]
Source: www.ruetir.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 2 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 2
Novel cardiotropic capsids transduce more than 90% of cardiomyocytes in non-human primates (NHPs) and detarget the liver and dorsal root ganglia (DRG); show safety and efficacy in a mouse model of…
Source: www.streetinsider.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Rare Impact Awards - NORD's Rare Impact Awards - 3 day(s) ago
This very special event will celebrate NORD’s legacy and achievements, and honor those individuals and organizations doing remarkable work on behalf of the rare disease community.
Source: rareimpact.orgCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 4
🎬🌟 Season 2 Kickoff: “All Things Lifts” in the Hope & Housing ALS SeriesExciting news! We’re launching Season 2 of our transformative Hope & Housing ALS se…
Source: www.youtube.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 2A Life Derailed: My Journey with ALS - 3 day(s) ago
A Life Derailed: My Journey with ALS
Source: www.amazon.comCategories: General Medicine News, Rare DiseaseTweet
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Mashup Score: 6Promising New Therapy Lifts Life Quality for MND Patients - 3 day(s) ago
Largest-ever trial of a psychological intervention for people living with motor neuron disease (MND) finds acceptance and commitment therapy (ACT
Source: www.miragenews.comCategories: General Medicine News, Rare DiseaseTweet
RT @BrielmaierL: FDA informed consent guidelines https://t.co/DBFx11ESps