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    Testing for CF - 8 month(s) ago

    Diagnosing CF is a multistep process. A complete diagnostic evaluation should include a newborn screening, a sweat chloride test, a genetic or carrier test, and a clinical evaluation at a CF Foundation-accredited care center.

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    • Almost all babies get #NewbornScreening at 1-2 days old. For most, the results come back normal. If a result isn’t normal, it doesn’t mean your baby has the condition. They'll need a diagnostic test, to be sure. See how this works for cystic fibrosis: https://t.co/btLIHuvtMl https://t.co/DSVr9rEOvT

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    Patient Registry - 3 year(s) ago

    The CF Foundation Patient Registry collects information on the health status of people with CF who receive care in CF Foundation-accredited care centers and have agreed to participate.

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    • The registry that gives annual reports in less than five years... https://t.co/tl5OkI1tmE https://t.co/YfdFOOIPyk

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    Patient Registry - 4 year(s) ago

    The CF Foundation Patient Registry collects information on the health status of people with CF who receive care in CF Foundation-accredited care centers and have agreed to participate.

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    • The @cf_foundation patient registry one wildly successful example: https://t.co/dPclfdynWG

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    Patient Registry - 4 year(s) ago

    The CF Foundation Patient Registry collects information on the health status of people with CF who receive care in CF Foundation-accredited care centers and have agreed to participate.

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    • What's a patient registry? Check out the @CF_Foundation resource page for theirs: https://t.co/medQ6CUqwO